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I.B.AHC
Biobank and Clinical Registry for Alternating Hemiplegia
a
service for the development of the research on this
rare disease |
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Alternating Hemiplegia
of Childhood (AHC) is a very rare neurological disease,
still poorly investigated.
I.B.AHC
is composed of two main repositories, the Clinical
Registry and the Biological Bank
(Biobank), designed to collect, organize, keep and share
both the clinical data and the biological
samples (DNA, RNA and Cellular Lines) of the patients
affected by AHC.
Thanks to I.B.AHC, the collected clinical data and biological
material are available for any scientifically valuable and non
duplicated study and research on AHC.
For further
information, please contact info@ibahc.org |
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The I.B.AHC project presented
at the Inaugural Conference
of the ESBB -
European, Middle Eastern and African Society
for Biopreservation & Biobanking
(Marseille, 16-19 November 2011)
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Two new genetic research projects have been granted the access to the I.B.AHC Biobank and
Clinical Registry
at the University Cattolica and at the Hospital Bambino Gesù
in Rome
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New study about the Quality of
Life of the patients affected by
Alternating Hemiplegia, based on the data collection
in the I.B.AHC Clinical Registry
(2011 - 2012)
funded by A.I.S.EA Onlus and by AFHA
coordinated by A.I.S.EA Onlus
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to the News)
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I.B.AHC
Biobanca e Registro Clinico per l'Emiplegia Alternante
un servizio
per lo sviluppo della ricerca su questa malattia rara |
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L'Emiplegia Alternante (AHC) è una malattia neurologica molto
rara e ancora poco studiata.
I.B.AHC
consiste di due strumenti principali, il Registro
Clinico e la Banca Biologica:
due contenitori progettati per raccogliere,
organizzare, conservare e condividere sia i dati
clinici dei pazienti affetti da Emiplegia Alternante,
sia i loro campioni biologici
(DNA, RNA e Linee Cellulari).
Attraverso I.B.AHC, i dati clinici e i campioni biologici
raccolti vengono messi a disposizione per qualsiasi studio e ricerca per l'Emiplegia Alternante purché di
qualità scientifica e non duplicato.
Per maggiori informazioni,
contattare info@ibahc.org |
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International Workshop
on Alternating Hemiplegia
Genoa,11 November 2011
Program
All the presentations available
in the Documentation Area
(Login/Registration in the Menu
"More Info") |
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