THE ROLE OF THE TREATING PHYSICIANS
INTRODUCTION
The association A.I.S.EA Onlus has always believed in the
importance of the collaboration with the specialist treating physicians of
the AHC patients, and in the utility of the work with them in a network, with
the aim both to develop a better health and social care, and to support the
active and aware participation of the patients in the study and research
activities.
THE ROLE OF THE SPECIALIST TREATING
PHYSICIANS
The role of the specialist treating physicians is fundamental
for the success of I.B.AHC and it is based on their agreement to share the
information on their patients and to contribute actively to the study of the
disease, to the development of good, shared and validated diagnostic and care
practices and to the development of an efficient research of a treatment.
Therefore, the requested tasks for the treating physicians
willing to participate to I.B.AHC, are:
- information to their patients about
I.B.AHC and the opportunity to participate to it;
- presentation of their patients and
collegial discussion of their diagnoses during the I.B.AHC
validation video-sessions;
- entering and updating of the data of
their patients in the I.B.AHC Clinical Registry; sending of the
blood drawings, of their patients and their parents, to the
I.B.AHC Biobank;
- information to their patients on the new
studies and research projects initiated thanks to I.B.AHC and
supported by the association; collaboration with such projects,
in particular by supporting their patients in the
participation; communication of the results of these projects to
their patients.
In return, I.B.AHC can offer:
- visibility about their work in collecting and validating the
clinical data of their patients and possibility to actively
participate, as the referent of their cases, to international
research projects
- easy consultation and use of the follow
up information on their patients, since the patient data
are organized in clinical records in the I.B.AHC Registry,
updated also with the results of the studies to which the
patients have participated
- analysis and study of the data of all the
validated patients in I.B.AHC, with the aim to improve the care
of their patients
- participation to the video-sessions for
the collegial validation of the diagnosis of all the cases
entered in I.B.AHC, and to all the informative events organized
by A.I.S.EA and by its Scientific Committee
- networked collaboration with all the
other specialist physicians participating to I.B.AHC, with the
Scientific Committee and the advisors of A.I.S.EA, and with the
researchers using I.B.AHC
- information on the individual and general
results of the studies using I.B.AHC
- updating on the activities of the
association, on the current studies and research and on the
national and international publications
- possibility to realize clinical and
diagnostic studies and surveys, with the enrolment, if needed,
of the patients participating to I.B.AHC
- possibility to participate to the
definition of the regulatory and functioning processes of
I.B.AHC
HOW TO PARTICIPATE TO I.B.AHC
As for the patients, also the participation of their specialist treating
physicians is free and voluntary; at any time, it is possible to withdraw, by
sending a written communication to A.I.S.EA at the email address
info@ibahc.org. It's not necessary to become a member of
A.I.S.EA Onlus to participate to I.B.AHC.
In order to participate to I.B.AHC, the
treating physician must first enrol,
by signing the Informed Consent Form. |